Kyle & Carla currently lives in Botswana. In December 2012, they contacted us to discuss the possibility of storing cord blood and tissue stem cells for their unborn child. At that time they had no idea How important is this decision? A month later they chose to store with us. Their little girl, Paige, was born at Portland Women’s and Children’s Hospital. Children in London in March 2013. Then Carla called us back in February 2014 with the news that Paige had been diagnosed with cerebral palsy. She told us it was mild and that they were working hard with her physical and occupational therapist. At the same time, both Kyle and Carla were doing their best to maintain a very positive attitude. In the coming months, Kyle & Carla and the Smart Cells team worked together to provide the hospital with all the information required for a potential transplant. In April 2014, we launched and shipped their cord blood unit to Dukes University in North Carolina, USA for use in the process.
organ transplant. “We are so grateful to have had the opportunity to save Paige’s cord blood stem cells, and let’s hope she can make a difference,” Carla told us.”
Kyle and I did some research on stem cell storage and smart cells certainly came out on top. It was amazing from the moment we signed up until the day when, unfortunately (and fortunately, we got it) we had to order our daughters’ stem cells to be sent to America for re-infusion. It is not very common to store your baby’s stem cells in South Africa and Botswana, so it was very strange for us until we did more research on it and it became more clear why one should store stem cells and cord blood. The world of medicine is evolving so fast, and it’s the best investment we could ever make for Paige.
We were dealing with Mike and he made everything seem so easy and under control. From the moment we contacted him to sign up with Smart Cells until we had the stem cells collected from the hospital, he couldn’t have been more helpful.
Friendly, efficient and professional.
Unbelievable! They were very understanding as it can be a very stressful time as this was our first child.
Very professional and we knew we were in good hands and that our child’s stems cells would be looked after.
Most definitely The stem cell collection kit was delivered way before time and collected as soon as the stem cells were retrieved.
Obviously, the cost is a big deciding factor but when you look at the bigger picture, these stem cells could save your child’s life and you cannot put a price tag on something like that.
If they are in a position to do so, I would definitely recommend that they store it with Smart Cells. They are a reputable and professional company and they are always ready to answer any question – big or small.
Most definitely, it is possibly the best investment you could ever make for your child. You never know what is going to happen in 10-15 year’s time.
Thank you for the wishes and as soon as we have reached Dukes and the infusion is done, we will certainly be in contact and let you know how it all went. Without your service, this would never have been possible so we cannot thank you enough.
You have made us feel confident that everything was taken care of and you made our lives so much easier where ever possible. Thank you again and we look forward to speaking again soon.
We arrived back from the States last Sunday (18/05/2014) and we are just trying to get back to normality as the jet lag was a problem for us. Poor little Paige can’t understand why she has so much energy at 02:00am and we want to sleep.
Dukes University was incredible. They made us feel so welcome and at ease. They helped out wherever possible. There was nothing to big or too small, they even went as far as offering to collect us from the airport when we arrived.
It was a lot more straightforward than we had anticipated. We had to be there at 11:00 so that they could start preparing the cord blood. Once the IV was in (which took a few attempts and I don’t think Paige is going to trust us for a while) but once it was on, the infusion took about 10 minutes followed by 2 hours of a saline drip. Paige slept for most of the time we were there. She was so brave, it was us who were the problem, stressing and worrying too much.
But all in all, we are so happy that we had the opportunity to do it, and now it’s all done. We just have to wait and see what the outcome will be.
In 3 months time Dukes University would like a report on Paige’s progress, and I will be keeping you informed as to how Paige is doing.
At 6 months, Paige could not sit and spent most of her time with her right little hand in a fist and her toes curled up. We knew then, something was not right. We then started intense Physiotherapy and occupational therapy in Johannesburg. We travel there every 2 weeks for a week of therapy.
She is a very determined little girl and surprises us everyday. We were told that if there are any changes made by the cord blood re infusion we would see it between 3-6 months after re infusion. It has been exactly 2 months since we visited Dukes University. Paige is crawling, which never thought she would be able to do and most recently climbing stairs, pulling herself up onto furniture and standing while hold my hand. It is difficult to say if this is due to the re infusion or purely from her natural development.
We just know, we have done everything in our power to help make Paige’s life that little bit more easier. As much as the trip over to America was stressful (more for us than Paige) we would do it over again in a heartbeat.
Smart Cells arranged the shipment, etc for us and all we had to do was get there. They were truly amazing and nothing was ever a problem. The support that we received in a situation like this made us realise that we made the best decision to store our daughters stem cells and cord blood with them.
We are all doing very well thanks. Paige has started preschool and loving it. The teachers have been fantastic and so supportive. Paige’s Occupational therapist goes to school once a week so show the teachers what they can do to help Paige through play and help her with day to day activities.
To be honest I thought Paige would battle a bit more at school but she has just sailed in and fitted in so well. Luckily kids at that age don’t see differences in other kids. She just seems to be improving all the time and is a real little chatter box.
We did the botox on her arm in August which has helped her so much and now we just constantly work the muscles to increase the strength.
We still do block physiotherapy every 2 months just to give us new ideas on how we can help her as Paige is developing and growing.
We have all been away in the Okovango Delta which was absolutely amazing. We have been very busy after a new arrival to the family. Ware still finding it so hard to believe that Tyler will be one in a few weeks. He has been an absolute pleasure and adored by his big sister Paige.
Paige is doing exceptionally well and she loves school and just lives to entertain. She still does a lot of physio and occupational therapy and we expect that to continue for some time. We are very lucky that the therapist goes to Paige’s school and they do exercises that will help her in daily activities at school.
She has just had her 3rd lot of botox in her hand and leg as we find this helps to relax her muscles and get maximum use out of her hand and leg. She is very active and nothing holds her back. She gets involved in all activities at school: Ballet, Monkeynastix, Playball and Yoga.
She amazes us every day and proves to be a very determined little girl.
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